Brian's Blog: Austin To Have Surgery To Remove Tumor

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Austin will have to undergo surgery to remove a non-cancerous tumor in his right ear.

Austin will have to undergo surgery to remove a non-cancerous tumor in his right ear.

By Brian Allen KSFY

Two days ago, we received some horrible news about Austin.

Mandy took Austin to the doctor after he complained of some pain in his right ear. We figured it was your run of the mill ear infection which would be cleared up with an antibiotic and that would be it.

Turns out, that's not what the problem was.

In the days since, which have come in rapid succession, we have learned that Austin has a type of non-cancerous tumor growing inside his right ear canal. It's symptoms can be treated with medication but the tumor can not. It will have to be removed through surgical means.

This is the type of scenario I have had nightmares about; my child gets seriously ill and there is nothing I can do about it. Now we are living it.

Today, I saw my 5-year-old son slide into a CT machine so our surgeon will have an "inside look" at what this mass looks like: how truly big it is. From there, he will develop his plan of attack to remove it. We have been told this needs to come out sooner rather than later. But when I saw Austin lying on the CT machine and being slid into it for a scan, I went absolutely weak in the knees. This is my son and I can not do anything to help him or make this go away.

I'm finding out the most dangerous thing you can do in this situation is ignore it or delay in making a decision. Already, in addition to putting pressure on his middle ear, it's pressing on some nerves which connect to his skull and his jaw which is leading to some pain. Our surgeon told us that to leave this tumor in place would lead to the destruction of his right inner ear (meaning he would go deaf in that ear) and that eventually it would put pressure on facial muscle nerves, leading to paralysis of his face.

This entire thing just makes me so sick to my stomach I can hardly stand it and I have yet to be able to talk about this with anyone without breaking down into tears.

I must let you know these three days have been the most challenging of my life. The support Mandy and I and Austin have received has been outstanding. There has been a re-assuring outpouring of support from friends and family. Mass intentions have been said for Austin at St. Mary's Catholic Church in Mapleton, Iowa and St. Michael's Catholic Church here in Sioux Falls. This week, Austin received the Anointing Of The Sick from Father Kevin O'Dell at St. Michael's. Austin and Father O'Dell are buddies. On Monday night, when Father O'Dell gave Austin the anointing, he did so in a side chapel at St. Mike's where afternoon adoration was taking place. About 5 people were worshipping at the time. He said out loud "Folks, I'm going to have to interrupt you for a second here...." then he performed the anointing. Afterward, Father O'Dell had Austin kneel beside him as they said the "Our Father" and "Hail Mary" prayers. It was re-assuring but tough to hear Austin's little voice saying these prayers after receiving an anointing meant for the sick. But what was also special is that while Austin and Father O'Dell were saying the prayers, the 5 worshippers we interrupted also said the prayers with them. It was comforting and overwhelming. The kindness of strangers can be tough to accept.

Both my wife and my mother are telling me to keep this in perspective and to be positive, telling me "Thank God it's not Cancer" and "Thank God we live in a time where this can be fixed". I DO thank God for those things and for many more. Having said that, what we are left to deal with isn't all that great. He still has a mass growing in his ear that is impacting his health and needs to be removed. He is still going to have to work through a lot of fear and pain and he prepares for this surgery, has the surgery and then has to recover.

Also to consider: this tumor could come back meaning he might have surgery after surgery to deal with it.

Austin will be cared for at the Sanford Children's Hospital. His surgery date is up in the air but we believe it will be soon. The ironic thing is: as the Sanford Children's Hospital was being built, Mandy and I would drive by it and say to ourselves "I hope Austin and Cameron never have to spend anytime in there". Now, we know Austin will be spending some time there as a patient being treated for a condition we never saw coming and prayed would never have to be dealt with.

There are postives: it is non-cancerous (and please God keep it that way). We DO live in a time where this was detected early and can be treated early through surgery. But it is just so heartbreaking to know he will have to go through this. His mother and I will be there along with Cameron and assorted cousins, aunts and grandparents. But it in the end it's he who is suffering, he who will have to endure this and I can not shift the burden off of him because if I could I would. On the nights where I get to come home and put him to bed, I always tell him "You are the moon and the stars to me Kiddo" and he is. Both my boys are.

Today as we were coming home from his tests, I heard his little voice from the backseat say "Wow, the sun is so big and bright". It pierced my heart a little. He notices the good things in life. He never hurts anyone. He likes to help kids at school and is never a bully or a name caller. He loves his family and God. He enjoys learning new things about life...and this bad thing has to happen to him. Why him? It is a question with no answer. It's just how life is playing out. I am not a big fan but the best I can do is love him and help ease his fear and do what I can to manage his pain.

Last night, after his pain meds kicked in and he fell to sleep, I checked on him several times to make sure he was OK. He was in deep sleep and looked peaceful and I got mad inside that this burden has been placed on him. I'm his Dad. I'm supposed to protect him and on this I am essentially powerless. It is so very frustrating.

Until his surgery, he will be on his medications and we've been told he can resume his normal life for the time being. On Thursday, he will be back in school and I will go back to work and we will sit and wait for the surgeons to review the CT Scan and to come to a decision about the surgery. Then the mass will be removed. Our prayers going forward will be asking for God to protect Austin's health, to give him the strength to get through this, to give us the strength to get through this, to give the surgeon wisdom to pick the best course of action and for this to be a one-time event....that the tumor will not grow back after being removed.

If you could add your prayers to ours, we would appreciate it. Austin is a good, gentle, loving boy. I am still in shock that this is happening. He is my son and I love him with all of my heart.

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Sunday, Sep 27 at 2:14 AM Michelle R - Montgomery, AL wrote ...

Hi Brian - it is 3am here and I am trying to calm my racing mind and my fear regarding my 4-year-olds surgery next week at Children's Hospital for an ear tumor. I came across this blog during a google search. I always feel stronger when I have more knowledge. Almost every word you wrote mirrors my thoughts, especially the CT part. I am trying to give all my worries to God, but being a parent they're stubbornly staying with me. I pray for both our boys. e-mail: davidsmommi@yahoo.com

Friday, Sep 25 at 3:09 PM Marie wrote ...

Brian, It is so clear that your family means everything to you. As parents I don't think there is anything harder than watching our children suffer. I'm sure you would trade places with him in a heartbeat. Please know that many people will be praying for your Austin.

Friday, Sep 25 at 1:19 PM Huron wrote ...

Nothing can make us as parents feel more helpless than one of our children being ill and we can't fix it with a snap of the finger. Just know many prayers and thoughts are being sent your way!

Thursday, Sep 24 at 8:53 PM LInda wrote ...

Keeping you in my prayers for a fast full recovery...You are a great Dad Brian....

Thursday, Sep 24 at 3:21 PM Angel wrote ...

My thoughts and prayers are with you all during this difficult time!

Thursday, Sep 24 at 2:55 PM Cindy wrote ...

Brian stay strong we will also include little Austin and your family are in our prayers take comfort in knowing he is in good hands

Thursday, Sep 24 at 9:08 AM Ann wrote ...

One of the most difficult things in life is watching one of your children suffer. Keep the faith, God has always come through for me and I have no doubt He will for your family as well!

Thursday, Sep 24 at 8:54 AM Liberty wrote ...

there is power in pray and God does listen I know that to be fact.

Thursday, Sep 24 at 8:51 AM Pat wrote ...

Judging by his looks I'd say he's one strong kid and will come out of this just fine!Keep good thoughts and stay strong.

Thursday, Sep 24 at 8:51 AM Peggy wrote ...

Brian:I am praying for all of you!

Thursday, Sep 24 at 8:51 AM Ellen wrote ...

Best wishes and prayers Brian - let us know when he's up and running again!

Thursday, Sep 24 at 8:50 AM Bob wrote ...

Take care of Austin, and yourself, through all of it. I'm sure everything will work out well and we're praying for you all.

Thursday, Sep 24 at 8:50 AM Phil wrote ...

Keeping Austin....and you and the rest of your family, in my prayers

Thursday, Sep 24 at 8:49 AM Mora wrote ...

Oh, Brian, I understand...Of course! I imagine the sorrow in these moments BUT Austin is in my prayers as well and I am asking God to watch over you.

Thursday, Sep 24 at 8:49 AM Bob wrote ...

Brian, I hope you caught it early. Please know our prayers are with you all.

Thursday, Sep 24 at 8:48 AM Woody wrote ...

Our prayers to your family also Brian.

Thursday, Sep 24 at 8:11 AM momma of 4 wrote ...

Deep in your heart you have the strenght to make it through this.... the pain having to watch a child go through this probably hurts the worst. We just went through this with my husband sounds alot alike, all went well and seems to be going great! We will have to watch it to make sure it doesnt start up again. Our prayers go out to you and your family...... HAVE FAITH.

Thursday, Sep 24 at 7:40 AM Lroemen wrote ...

Our thoughts and prayers are with you and yur family. Hang in there!!!

Wednesday, Sep 23 at 11:21 PM Beth wrote ...

Brian, our thoughts and prayers are with you. Sanford is a wonderful hospital as my daughter is receiving medical treatment there. Keep us posted on his progress. A Fellow St. Michael's member

Wednesday, Sep 23 at 10:10 PM Lorraine wrote ...

I'm so sorry Brian. I will pray for you, your wife, and Austin. Hang in there buddy :)

Wednesday, Sep 23 at 10:03 PM Sasha wrote ...

I am so sorry to hear about your little one. It is always difficult to deal with things like that especially if it is your own child. When he has his surgery he will have the best care (I use to work at sanford) and support that all of you will need. Hopefully he will have a speedy recovery and not have to relive it again. Your family is in my thoughts and prayers.

Wednesday, Sep 23 at 10:01 PM Terri wrote ...

Brian, your son is blessed to have such a loving and compassionate dad. That will be a great help in his recovery. Hang in there!

Wednesday, Sep 23 at 9:56 PM Marla wrote ...

Lord, deliver, heal and restore completely! Our prayers are with you all... God has good plans.

Wednesday, Sep 23 at 9:56 PM Kathleen wrote ...

all good thoughts for you, your son, and your family

Wednesday, Sep 23 at 9:55 PM Dave wrote ...

We're all with you, Brian and Mandy.

Wednesday, Sep 23 at 9:37 PM Suze wrote ...

Please keep us posted on Austin's surgery. I'll be keeping him in my thoughts and prayers.

Wednesday, Sep 23 at 9:37 PM DPWTV wrote ...

my thoughts and prayers are with your son and your family my friend

Wednesday, Sep 23 at 9:23 PM The M Family wrote ...

Believe in the power of prayer....I cannot imagine the pain being the parents of 2 small children myself. We will be thinking of your entire family and for Austin to come out 100%. Bless him.

Wednesday, Sep 23 at 9:11 PM Ann wrote ...

Know that my prayers also will be joining all the others

Wednesday, Sep 23 at 9:03 PM Jeni wrote ...

good luck to your little boy! I know it will be scary, but best for him!

Wednesday, Sep 23 at 8:54 PM Justin wrote ...

Brian, your family is in my thoughts and prayers.

Wednesday, Sep 23 at 8:54 PM Lucy wrote ...

austin you are in our prayers too

Wednesday, Sep 23 at 8:54 PM Irene wrote ...

Brian, my best wishes and prayers to you and your family. I know Austin will come through this with flying colors!

Wednesday, Sep 23 at 8:53 PM Trent wrote ...

I have had some helpless feelings in my life, but there is nothing like turning your child over to a group of highly skilled, well intentioned strangers. Stay strong, "be the man" for your family, and know that we in Ames are keeping prayers and good thoughts for you and yours.

Wednesday, Sep 23 at 8:53 PM Carol wrote ...

Brian, I join you and William in prayer. What a beautiful little boy!

Wednesday, Sep 23 at 8:50 PM Mary wrote ...

Brian rest assured that many many people are lifting Austin up in prayer tonight, continuing through surgery and after. It's so very hard for a parent to have to watch their child suffer. There are so many questions and, as you said, no answers. I'll remember all of you in my prayers.

Wednesday, Sep 23 at 8:48 PM Scotty wrote ...

austin are in ours prayers

Wednesday, Sep 23 at 8:48 PM Matt wrote ...

Brian, I hope the surgery goes well...

Wednesday, Sep 23 at 8:47 PM Ken wrote ...

Sorry to hear this, Brian. Good luck!

Wednesday, Sep 23 at 8:47 PM William wrote ...

Brian, I am agreeing with everyone that is in prayer right now for your family. When two or more are agreeing touching anything on earth it shall be done by my Father in Heaven. When three or more are present, the spirit of the Lord is with us. The anoiting will be strong during the next several days. Grab a hold of it & don't let go.

Wednesday, Sep 23 at 8:46 PM Shane wrote ...

Will keep Austin in our prayers,

Wednesday, Sep 23 at 8:46 PM Bob wrote ...

Austin is in our prayers. Bob and Sandi Laskowski

Wednesday, Sep 23 at 8:46 PM Randi wrote ...

Sending prayers.

Wednesday, Sep 23 at 8:46 PM Jody wrote ...

Thank you for sharing a private, personal story. My thoughts are with your family for a speedy recovery.

Wednesday, Sep 23 at 8:45 PM Leslie wrote ...

By chance I came across your blog tonight and ended up in tears. My son was born 12 weeks premature and for the first 3 years of his life he endured so much and as a parent it was THE most difficult thing I had ever gone through. So yes, I can relate to what you and Mandy are going though. At the moment I'm at a loss for words on how to "comfort" you but know that you are all in our thoughts and prayers and with faith you will find comfort. Heartfelt hugs!

Wednesday, Sep 23 at 8:45 PM Lori wrote ...

I will pray for you...I hope all goes well. When my son was 3 he and I went through a similar very scary situation. I totally remember the weak in the knees, sick to my stomach feeling. So sorry you and your family is going through this.

Wednesday, Sep 23 at 8:44 PM Susan wrote ...

Although I don't have human kids, I empathize. My heart goes out to you and your family. Fingers and toes crossed that Austin comes through with flying colors - and that you survive without your knees giving out completely.

Wednesday, Sep 23 at 8:44 PM MJ/SF 1986 wrote ...

Brian, I hope everything goes well... Your son will be in my prayers tonight. Be strong!

Wednesday, Sep 23 at 8:42 PM Kristyn wrote ...

My family will be praying for him!

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